The following is our story with TSC. I wrote this to share with those who are supporting my congregation’s fundraiser to help with our medical costs.
There are no words to describe what happened. We didn’t see any warning signs. When Naomi’s infantile spasms began, we were paralyzed just like her. We didn’t know what to do, where to go, or what was happening. It was every parent’s nightmare, to watch their own child suffer.
Naomi’s “head bobs” seizures put her at risk of physical injury and soon she was in the emergency room. She began her first anti-seizure medications. We were referred to a pediatric neurologist. He suggested that Naomi had a disease called Tuberous Sclerosis Complex. But, . . . Read All