Dear Friends and Family,
We choose to fight, not only for Ethan, Elsie, Naomi, and Esther, but for the 1 in 6,000 kids born with TSC every day…50,000 in the U.S…over 1 million worldwide. Tuberous sclerosis complex, or TSC, is more common than Lou Gehrig’s disease and Cystic Fibrosis. There is no cure. Yet!
Ours is a story of determination. Our stunningly small group of parents and adults with TSC, through sheer will and passion, have brought this disease to the brink of a breakthrough. We are joined in our fight by aunts and uncles, brothers and sisters, grandparents and friends, co-workers and colleagues. We’re asking you to join us in the fight to find a cure! Please help support . . . Read All